
My husband and I were blessed with our amazing son Max who is now 9 years old. Our fighter had a rough beginning when he entered this world and fights every day. In September of 2011, Max was diagnosed with Prader-Willi Syndrome. After meeting with doctors and doing research we are still learning every day. To learn more about Prader-Willi please visit www.fpwr.org. Follow our blog and keep up with our family and Max's progress!
LA 2017!

LA 2017!
Wednesday, April 11, 2012
My Brave boy
Hi eveyone! Well, we are on day 10 of Max's Growth Hormones that he needs to be on and he is such a trooper. I cannot lie, it's been pretty heart breaking though. He needs this shot every night to help him not only grow properly, but mostly at this point to gain lean muscle and help his metabolism, which he desperately needs, but giving a 23 month old a shot every night when he doesn't understand why you are doig this to him is heart wrenching! We had a wonderful nurse come over and go step by step to train us on how to put together the shot, mix the drugs and administer the drug, practicing on fake body parts...then came the real deal. He cried so hard. We had to pin him down and cause him pain that he didn't understand...and it only took a day or two for him realize when he saw the needle coming, he needed to run and then we had to pin him down, awful... So, like any parent, we now bribe!! LOL! Even though food is not what we do in our house given his circumstances, you have to do what you have to do. So, we save a special small treat with his milk that he only gets after his shot. We try to explain it and show him the treat...I am happy to say on day 10, he seemed to atleast understand he had to tolerate it to get the treat. He let Steve hold him while I gave the shot. He did cry when the shot went in, but settled pretty quick when he got his treat. What a long way a half of graham cracker goes!
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