LA 2017!

LA 2017!
LA 2017!

Thursday, June 13, 2013

One Small Step for Prader-Willi Syndrome

So, last year after Steve and I went to our first Prader-Willi Conference, and learned so much and met some really amazing parents, I decided that I needed to be part of the movement to find a cure. I would not just sit back and hope someone else does the work and it happens for Max in his lifetime. A couple from Canada, Tanya and Keegan Johnson started the One Small Step for Prader-Willi Syndrome when they decided they wanted to find a cure, about 10 years ago. It started with one walk and now it is almost at 100 walks around the world. Parents are joining together one walk at a time to raise money for research that is desperately needed. This year, along with another mom, Katy, we are hosting the 1st Annual One Small Step for Prader-Willi Syndrome! I am a bit nervous, but am hopeful it is a great day and that all goes smoothly! And that we have good weather! So...wish me luck and I will post again after the walk!