One Small Step For Prader-Willi Syndrome Walk was a success!

Steve and I wanted send our heart felt thanks for supporting us in our 1st Annual One Small Step for Prader-Willi Syndrome walk! The day started out with a lot of rain as we set up and we worried about people not showing up. We were so excited when at just before 9am, the cars started to show up and the rain lifted as if just for us! By 10am we had over 200 people checked in, wearing their shirts, buying raffles and having a great time! We had just a few sprinkles of rain as we walked, but overall we had a beautiful day. We were lucky enough to have the One Small Step founders, Keegan and Tanya Johnson come in all the way from Canada to support us and get up to talk and really pump us up. They founded these walks just 9 years ago with One Walk. This year, we will have walks in over 72 cities and in 7 countries! Last year these walks raised over 1.3 million dollars and this year we are hopeful to beat that goal. We are already more than half way there! We want you all to know that because of all the support of our friends and family, along with all the people who signed up with their own pages to raise money for the cause, we have raised so much more awareness this year, AND over $43,000 this year so far for our walk! One of the things Keegan Johnson talked about is that research has come to the point where there are drugs ready to be tested and put into clinical trials. It is money that is what holds this process from moving forward. So know that your money donated will help to get those clinical trials started. I just came back from San Antonio, Texas for the National Foundation for Prader-Willi Research Convention and got to learn about where all the money went this past year, about upcoming trials and hopes for studies with different drugs for hunger. It will be a long road, but going to events like this helps us to remain positive for Max's future. Again, thank you all for your love and support to Max and our family. We are already looking forward to next year!