LA 2017!

LA 2017!
LA 2017!

Thursday, February 20, 2014

Update Post Surgery of Tonsils and Adenoids

Well, unfortunately I have no amazing report about potty training. A work still in progress! However, great news about his surgery. First of all, the results came back from his sleep study showing SEVERE sleep apnea especially in his deep REM sleep cycle. The doctor basically said, no discussion, they need to come out! So, we took his next available surgery date because we were then so worried about him sleeping and breathing. The surgery went really well. The surgery took a little longer than expected because the tonsils and adenoids went deep into his tissue. The doctor felt that since this was the case, we would hopefully get some good long term results with all of that being gone. Hopefully since there was so much obstructing his breathing, it would really clear out. The first day, or half a day after waking from his surgery was tough. The expected having a hard time swallowing, not wanting to drink anything because he had to swallow was in full swing. He was so sleepy all day. Besides the anesthesia, they gave him morphine upon waking to keep him comfortable and then on pain medication overnight. By late afternoon he started to really get hungry and the nurse said he had to have a certain amount of liquid before the soft foods could begin. So, we worked hard getting some cold juice into him. We tried lemon ice, popsicles, jello, he wouldn't take anything but apple juice. Normally, we eat no carbs or sugar, but I told him he should take advantage of this moment because he could eat what he wanted for soft foods. Of course, he chose pancakes (plain) and macaroni and cheese! I couldn't believe he inhaled them just about 8 hours after surgery like nothing was up! From that moment on, he started to feel better and never expressed any pain or discomfort. With PWS, they say that these kiddos and adults feel light touch pain excessively, but often do no feel deep pain at all or not to the degree they should. So, whatever the reason he had only soft food for two weeks per doctors order, but minimal pain meds and the best recovery process I have ever seen. To top that off, his snoring is completely gone and his energy level during the day has sky rocketed! He must be getting much better sleep and breathing better in general throughout the day. I feel awful that he was suffering silently and that we did not know, but so thankful we did catch it and could help our little man. In 3 - 6 months we will another sleep study to verify that his apnea is either gone or better to some degree. It may still be there. If it is we will deal with it, but for now we will take the victory. Love you Max :)

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